Podcast Gems 3 – Dec 2, 2011: Rare Diseases, Orphan Drugs, GrandRX, Eye Nutrition, Hackerspace, and Regenerative Medicine

GrandRX.org is the gateway to rare and neglected disease treatments, discussed in this 2010 interview at http://www.grandrx.org/. It may have fallen on bad times, though, because there’s no activity in 2011, so it might have ceased operation. However, the concept lives and is addressed in an article about rare diseases and orphan drugs at http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1885017/ by a British doctor, which leads to a British rare disease site at http://www.raredisease.org.uk/, but no podcasts.

A study of a large number of people about eye nutrition and supplements was presented by a doctor in 2009 at a Vision Rehabilitation and Assistive Technology Exposition (VRATE) and is available at http://vrate.org/2009_audio_files/Eye_Nutrition_and_Supplements_by_Dr_Kevin_Huff.mp3. VRATE has a few other podcasts I found to be less interesting. They are also difficult to locate. If you want to check them out, this link is a good place to start: http://vrate.org/prior_VRATEs.php. Printed material about further trials, called Age-related Eye Disease Study 2 (AREDS2) and due for completion in 2013 are available here: http://www.nei.nih.gov/areds2/.

If you’re interested in the Maker movement (makezine.com, makerfaire.com, makershed.com), then check out the British hackspace movement (http://london.hackspace.org.uk/) which is discussed in a BBC Radio 4 Click On segment for 17 November and called “The Joy of Tech” at http://www.bbc.co.uk/podcasts/series/clickon for the next twelve days. Twelve days? Well, the BBC needs the space, so some podcasts are only kept a month and we’re already half way through that period. So, act now… The twenty-eight minute podcast also touches on fab labs and 3D printers. If you miss the deadline, the information may be outdated anyway. Wish I could attach a copy of each podcast, but my space problems are much worse than the BBC’s.

Regenerative medicine is changing about as fast as the Maker and Hackspace movement. A podcast from 2010 I just heard explains one reason for the speed when the speaker mentions a regenerative lab employing 500 people! Publicity about bladders grown on a material called extracellular matrix always shows one or two researchers. It’s encouraging to know that production of hearts, lungs, bladders, kidneys, livers and tracheae which can be made from extracellular matrix is being done by more than a small handful of pioneers. The podcast is the Highlights of the American College of Cardiology Annual Meeting (Part one) made May 5, 2010, and located at http://www.clinicalpodcast.com/index.aspx. That link will be the first page and you have to find older podcasts from the point. A pointer to them is on the right side of the page. Good listening.


About virginiajim

Retired knowledge nut.
This entry was posted in Uncategorized and tagged , , , , , , . Bookmark the permalink.

Leave a Reply

Please log in using one of these methods to post your comment:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.